The human side…

I am no amazing artist but today I drew this.  It is my representation of Alzheimer’s disease.  So many of the pictures I saw online only had the brain.  I felt that the human part was being dismissed as either unimportant or non-existent.  Trust me, the human part is likely the most important part.

Alz

It took me a couple hours to get this drawing done but in the end I am happy with the image.  In my drawing, I wanted to show not only the impact of the disease but the human that is dealing with it.  This is the third person that has been impacted by this horrible disease in my life.  I know there is no cure.  I know it is in my own future.  All of this, cause me great sadness.

So, now what.  Well, tomorrow (Tuesday) we are going to have social services come out to meet with my sister and I am my mom.  I am hopeful that we can get a PCA (personal care assistant) assigned to my mom.  What does this do?  It gives a needed break for my sister.  Being the care giver for my mom she is at ground zero with all of the nasty parts that go with this disease.  If we can even give her a couple hours a day, I know that her well being will be more healthy.  My goal right now is to care for my sister and help her.  She is doing a wonderful job in caring for my mom, she needs someone to care about her.  I know that we agreed that I would handle the decisions and money and she would handle the care.  I feel that my sister got the tougher deal.  A prayer or two for tomorrow to result in additional help would be awesome.

Many of you know my brother and have followed his journey.  He is an amazing writer and I am thrilled to know that his blog reached so many people.  Even though I am just a blip on the scene I thought it would be appropriate to end my blog in his typical way. (Sorry that I stole from you!)  This song has always spoken to me in so many ways.  Today is no different.  Thank you all for your support!

Unwell by Matchbox Twenty

But I’m not crazy, I’m just a little unwell
I know right now you can’t tell
But stay awhile and maybe then you’ll see
A different side of me
I’m not crazy, I’m just a little impaired
I know right now you don’t care
But soon enough you’re gonna think of me
And how I used to be, me

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